Getting Help from Community Services and Voluntary Groups

 

PRIMARY HEALTH AWARENESS TRUST · HEALTH CINEMA GUIDE

Getting Help from Community Services and Voluntary Groups

How community nurses, social prescribers and local charities – including PHAT – can support you between hospital or GP visits, so you are not left alone to hold everything together.

This page offers general information only. It is not medical advice. Always speak to your GP, pharmacist, specialist team or NHS 111 before changing medicines, doses, diet, exercise or any part of your treatment or care plan, and call 999 in a medical emergency.
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Watch This First – The Support That Exists Between Appointments

You can watch this in short pieces, pause when you feel tired, and come back later. The written guide below covers the same ideas step by step if you prefer reading or sharing with family or carers.

GP and hospital appointments are the “visible” part of the health system. But most of your health happens in the quiet hours in between – at home, in the supermarket, on the stairs, at the kitchen table when you are sorting tablets or reading a worrying letter.

The good news is that there is a second layer of support that many people either do not know about or are unsure how to ask for: community nurses, social prescribing link workers, community health and wellbeing workers, and local charities and voluntary groups. Used well, they can reduce loneliness, prevent crises, and give you practical support long before things reach A&E.

The Quiet Network Around Your GP

Think of your GP practice as the front door. Around that door is a whole neighbourhood of support:

  • Community or district nurses – nurses who visit you at home if you are housebound or struggle to get to the surgery, helping with wound care, injections, long-term condition support and end-of-life care.
  • Social prescribing link workers – sometimes called community connectors or wellbeing link workers. They focus on the non-medical side of health: loneliness, housing worries, debt, confidence, getting out of the house, finding local groups and activities.
  • Community health and wellbeing workers – in some areas, new roles where trained workers visit homes, help you access checks and screening, and connect you to local support for things like housing, finances and isolation.
  • Voluntary and community organisations – charities like PHAT, local Age UK branches, carers’ centres, faith-based groups, walking schemes, befriending services and more.

The rare insight here is that none of these roles are meant to replace your GP. They are designed to stretch the system into your everyday life, so that small issues are spotted and supported before they turn into emergencies.

Who Does What Between Appointments?

Community and district nurses

Community and district nurses are usually based in community nursing teams linked to your local NHS trust. They visit adults who cannot easily attend clinics – for example because of mobility, frailty, severe breathlessness, recent surgery or being near the end of life.

They can:

  • provide wound care, dressings and injections at home;
  • support you to manage long-term conditions like heart failure, diabetes or lung disease in your own environment;
  • help you and your family learn safe ways to monitor your health (for example, recognising early signs that you need medical review);
  • work with GPs, therapists and social care to adjust your plan as your needs change.

A rare but important point: community nurses see your real life context – the stairs, the bathroom layout, the food in the cupboards, the way you pace yourself. They are often the first people to spot when a plan that looks sensible on a computer is unrealistic in your home.

Social prescribing link workers and community connectors

Social prescribing link workers are usually attached to GP practices or primary care networks. Their job is to spend time with you, listen to what is getting in the way of your health, and then connect you to local support.

They can help you:

  • find local groups – walking, art, lunch clubs, men’s sheds, bereavement support, carers’ groups;
  • link in with advice on benefits, debt, housing, food support or legal worries;
  • build confidence to leave the house or try new activities, sometimes even accompanying you the first time;
  • turn vague hopes (“I don’t want to feel so alone”) into small, practical steps.

Rare tip: treat your first meeting with a social prescriber like a health MOT for your life outside the GP surgery. Bring not just medical issues, but also the “background noise” – money worries, caring responsibilities, housing problems, fears about going out, faith or cultural needs. These are exactly the areas they can work with.

Community health and wellbeing workers

Some areas now have community health and wellbeing workers who visit homes, particularly in neighbourhoods with high levels of illness or disadvantage. They are often recruited from the local community.

Their work may include:

  • helping people register with GPs and attend checks or screening;
  • spotting early signs of problems with housing, mental health, debt or isolation;
  • linking people into community groups, social prescribing schemes and voluntary services;
  • feeding back to the NHS about what life is really like on the ground, so services can improve.

If someone like this knocks at your door, you are allowed to ask who they work for, how your information will be used, and whether they can leave written details for you – especially if you prefer to involve family before agreeing to visits.

Voluntary groups and charities (including PHAT)

Voluntary and community organisations are often where the real magic happens: coffee mornings, telephone befriending, exercise classes, practical help after hospital, local transport schemes, peer support from people who have “been there”.

PHAT sits in this space: a UK charity offering:

  • gentle Zoom exercise sessions designed for older adults and people with long-term conditions;
  • clear, trauma-aware health education (like this blog) to help you understand your body and the system;
  • a sense of community and routine – familiar faces, regular sessions, and space to move at your own pace.

These voluntary services are not “extras”. For many people, they are the difference between coping at home and sliding towards crisis.

Designing Your Own “Support Map”

A rare, powerful exercise is to draw your own “support map”. It helps you see what you already have, where the gaps are, and where community services could slot in.

Take a blank page and draw three circles:

  • Inner circle – “my everyday anchors”
    Family, neighbours, close friends, faith community, PHAT Zoom sessions, one or two trusted professionals.
  • Middle circle – “my formal health & care team”
    GP, practice nurse, community or district nurse, social worker, specialist clinics, social prescriber, pharmacist.
  • Outer circle – “my wider community”
    Local charities (Age UK, carers’ groups, condition-specific charities), community centres, befriending services, walking groups, transport schemes.

Then add a simple note:

  • Who helps with medical things (medicines, wounds, tests).
  • Who helps with daily life (food shopping, bills, cleaning, transport).
  • Who helps with emotional support (listening, companionship, reassurance).

Bring this map to your GP, social worker or social prescriber and say: “Here is how things look from my side. Where do you think community services or charities could fit in?” This turns an overwhelming situation into a shared problem you can look at together.

Questions to Ask About Community Support (Take to Your GP or Link Worker)

You can read these out or hand this box over at your next appointment:

  • “Does our practice have a social prescribing link worker? How can I be referred to them?”
  • “Given my conditions and mobility, do I qualify for community or district nursing visits? If not now, what would need to change?”
  • “Are there local charities or community groups you recommend for people in my situation – for example exercise, confidence, loneliness or carers’ support?”
  • “Could you add my main community supports – for example PHAT classes – into my care plan, so other professionals know about them?”
  • “If I start going to groups or classes, how can we share important information safely between you and those services, with my permission?”

You are not asking anyone to take on extra work for the sake of it. You are asking them to connect you to support that already exists, so your health does not depend only on 10-minute appointments.

When Is It Time to Ask for Community Help?

Many people wait until they are exhausted before asking for help. Some early warning signs that it might be time to involve community services or voluntary groups include:

  • You are avoiding appointments or leaving problems until they become emergencies, because travelling and waiting are so draining.
  • Your carer is near burnout – snappy, tearful, or clearly worn down by constant responsibility.
  • You have had two or more A&E visits or emergency GP calls in a few months for issues related to breathlessness, falls, infections or mental health.
  • You feel lonely or disconnected most days, even if your medical tests look “fine”.
  • You are struggling with housing, money or practical tasks like shopping, cleaning or managing post, and this is affecting your health.

These are not signs that you have failed. They are signs that your life has moved beyond what occasional appointments can handle alone. Community and voluntary services exist precisely for this space.

Using Voluntary Groups Safely and Confidently

Most charities and community groups are run by people who genuinely care. At the same time, it is sensible to look after your safety. When trying something new:

  • Check whether the organisation is a registered charity or community group with a clear address and contact details.
  • Ask how your information will be stored and who can see it.
  • Be cautious if anyone pressures you for money or personal information that feels unrelated to the service.
  • Consider going with a friend or family member the first time, or joining an online session (like PHAT Zoom classes) if you are anxious about in-person groups.
  • Let your GP or nurse know if you are joining something that significantly affects your routines, exercise level or mood, so they can factor it into your care.

Remember: you are allowed to try a group and then decide it is not for you. The aim is to build a network that genuinely fits your personality, culture, beliefs and energy levels.

How PHAT Fits Into Your Community Support Map

PHAT is both an exercise resource and a community in its own right. Our sessions and blogs are designed to sit alongside, not instead of, NHS care:

We actively encourage you to mention PHAT in your care plans and reviews. For example, you might say to your nurse or social prescriber: “These classes are one of my anchors – how can we use them as part of my falls plan / heart plan / mood plan?”

Apply This Gently Today (5 Minutes)

You do not need to ring every service at once. For the next five minutes, try just one of these:

  1. Start your support map.
    Draw the three circles (inner, middle, outer) and write in the names of people or services you already have. Leave space for future community or voluntary support.
  2. Write one question for your GP or social prescriber.
    For example: “With my energy and walking as they are, which community or voluntary services would you recommend so I’m not relying only on urgent appointments?”
  3. Choose one safe step towards connection.
    This might be looking up PHAT sessions, phoning a local carers’ group, or asking a friend if they will come with you to a new group once you have details.

That is enough for today. Community support is built gradually. Even one extra person who understands your situation can make your whole week feel different.

Further Support and Reassurance

You can ask your GP practice how to contact their social prescribing link worker, community or district nursing teams, and any in-house care coordinators. Practice websites often list these roles under “Our Team”.

Local councils, Healthwatch organisations, Age UK branches and carers’ centres can signpost you to voluntary groups, advice services and befriending projects in your area. Many areas also have a “single front door” phone number or website for adult social care queries.

For urgent concerns between appointments, contact your GP, NHS 111 (online or by phone), or 999 in an emergency. Community and voluntary services are there to keep you steady, but they are not emergency services and should sit alongside, not instead of, NHS care.

This article reflects NHS England’s description of social prescribing as an approach that connects people to community activities, groups and services to address practical, social and emotional needs that affect health and wellbeing, delivered through link workers embedded in primary care and personalised care programmes. The role descriptions for social prescribing link workers – spending time with individuals, focusing on what matters to them, addressing barriers, and connecting them to community groups and statutory services – are informed by national role profiles and evidence briefs. The discussion of community and district nursing services supporting housebound adults with long-term conditions, wound care, self-management and end-of-life care at home is based on multiple NHS community nursing service descriptions and analyses of district nursing quality and demand. Reference to community health and wellbeing workers visiting households in deprived areas to address health and social issues, and evidence of improved screening, reduced emergency use and better coordination, draws on recent reporting of pilots in England. The wider role of voluntary and community sector organisations – including Age UK, Royal Voluntary Service and others – in supporting older people to stay well, providing integrated care programmes, and delivering many social prescribing activities is supported by professional and charity sector reports.
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